Posted on 10th April 2017 by Elise O'Kelly in Stories
Our son Joe was only eight when he was first diagnosed with a brain tumour and underwent surgery. He recovered well and we managed to get on with life despite the anxiety of knowing there was a high chance the tumour would come back. Joe was so positive and carried on even when he had to undergo radiotherapy at 13. Joe left home and started a new life at university. Within months he suffered a seizure and never fully recovered. He was 20 when he died at home with his fiancé of two weeks and us at his bedside.
“Joe’s brain tumour dominated the whole of his adult life. Despite everything he remained outgoing and managed to keep his positive outlook, he had a great love of life. He had just started at university when his tumour came back with a vengeance. He had met a great girl who he loved and they got engaged two weeks before he passed away with his head on my shoulder and surrounded by those he loved.”
Here is Joe’s story, as told by his father Paul Wilson…
Posted on 7th April 2017 by Crispin in Fundraising
Spring has sprung and Easter is the perfect time for some fresh fundraising.
We’ve hatched some egg-cellent ideas for you to choose from over the bank holiday weekend!
• Host an Easter picnic – pick a park and ask you friends for a donation to cover the food and drink, plus a little extra for Brain Tumour Research!
• Create your own Easter bonnet competition – a great time for young fundraisers. Collect an entry fee to raise funds.
• Easter bake sale – from rabbit-shaped cookies and rice-crispy-mini-egg cakes, to the traditional Simmel cake. Sweet treats are a guaranteed crowd-pleaser. Suggest £2.50 a cake!
• Easter egg hunt – set a trail with clues around your local park, community centre or at home. Ask for an entry fee to take part.
• Guess the mini eggs in a jar – 50p per guess!
• Rabbit in a Hat Badge – purchase one from our eBay shop for yourself or call us to request a box of these unique pin badges (created in memory of magician, Paul Daniels) to sell to your friends and family. You can also sell them at any of the above events too. That’s magic!
Click here to download special ‘Empty Belly’ posters that you can use to help publicise your event – these are fillable PDFs meaning you can type your details directly into the design to make your posters look really professional! We also have press release templates on our website which can be used to help you get some media coverage before or after your event. Don’t hesitate to get in touch with our Fundraising support team on 01908 867200 or email us if you need any further assistance or have any questions.
Happy hoppy fundraising!
Posted on 28th March 2017 by Elise O'Kelly in Two minutes with...
What’s the first thing you do in the morning?
Press the snooze button. I’m not very good at mornings, I am a night owl and don’t go to bed much before 1am most nights – often much later.
Posted on 26th March 2017 by Elise O'Kelly in Tributes
Paediatric nurse Gemma Edgar, 31, was diagnosed with an aggressive brain tumour in 2014, after initially being told it was only a migraine. Her sons, Dylan and Noah, were just two years and eight weeks old at the time.
Devastated, Gemma was rushed into surgery for a craniotomy to remove her grade four glioblastoma multiforme, followed by six weeks of radiotherapy and regular scans to monitor any regrowth.
Posted on 24th March 2017 by Elise O'Kelly in Tributes
Today, as his family and friends say goodbye to him, we remember brave supporter Ryan Taylor, 26, through the personal account of Brain Tumour Research team member, Susan.
Not long after I joined the PR team at Brain Tumour Research I started working with a young man who was living with a brain tumour. His sister Melanie had already done some amazing work fundraising for us, completing marathons in the oppressive heat of Dubai where she lives. It was clear she was a woman on a mission and I got in touch to find out a bit more about her motivation.
Melanie’s dedication was inspired by Ryan, her only sibling, who had been diagnosed in his twenties. I made contact and so began my “virtual” friendship with a young guy who, sadly, I never met but with whom I stayed in contact right until his death.