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If only brain tumour research could be funded in the same way as leukaemia and other cancers

Two minutes with… Sue Farrington Smith – Chief Executive

What’s the first thing you do in the morning?

Press the snooze button. I’m not very good at mornings, I am a night owl and don’t go to bed much before 1am most nights – often much later.

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Gemma & Noah cancer free for Mother’s Day

imagePaediatric nurse Gemma Edgar, 31, was diagnosed with an aggressive brain tumour in 2014, after initially being told it was only a migraine.  Her sons, Dylan and Noah, were just two years and eight weeks old at the time.

Devastated, Gemma was rushed into surgery for a craniotomy to remove her grade four glioblastoma multiforme, followed by six weeks of radiotherapy and regular scans to monitor any regrowth.

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Remembering Ryan Taylor

RIP Ryan TaylorToday, as his family and friends say goodbye to him, we remember brave supporter Ryan Taylor, 26, through the personal account of Brain Tumour Research team member, Susan.

Not long after I joined the PR team at Brain Tumour Research I started working with a young man who was living with a brain tumour. His sister Melanie had already done some amazing work fundraising for us, completing marathons in the oppressive heat of Dubai where she lives. It was clear she was a woman on a mission and I got in touch to find out a bit more about her motivation.

Melanie’s dedication was inspired by Ryan, her only sibling, who had been diagnosed in his twenties. I made contact and so began my “virtual” friendship with a young guy who, sadly, I never met but with whom I stayed in contact right until his death.

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Daniel Burridge – In Hope

Daniel Burridge rotatedDaniel is the youngest of three children with an older brother and sister. In his last year at Dr Challoner’s Grammar School in Amersham, Daniel is studying for A’ Levels in Further Maths, Physics and Geography, having already taken Maths last year.  He is applying to university to study Mechanical Engineering and hopes to get a place at Imperial or Bath.

Aged 17, Daniel was just 5ft, 5in tall, despite his Dad being 6ft 4in.  Investigations led to him being diagnosed with a tumour on his pituitary gland, which fortunately turned out to be benign.

“Mum found the six-week wait to learn whether the tumour was benign or malignant much more worrying than me.  It really affected her, especially as, unbeknown to me, she went online and looked up pituitary gland tumours and discovered that in 20 per cent of cases they are malignant.  I was more worried about whether I was going to be able to continue boxing, which I had enjoyed so much for the past five years.” 

Daniel tells his story…

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Two minutes with… Professor Geoff Pilkington

What’s the first thing you do in the morning?

Groan, look at The Times online, then panic about how much I have to fit into the day!

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