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If only brain tumour research could be funded in the same way as leukaemia and other cancers

Gruff Crowther – In Hope

Gruff CrowtherIn September 2014, Gruff Crowther was diagnosed with a low grade brain tumour after problems with his sight and distinguishing shape and colour persisted through the beginning of his school years. His parents have been very open with Gruff from the start, telling him right from day one that he has a tumour and that means a lump of badly behaved cells which are reproducing incorrectly.

Gruff was placed on an 18-month course of chemotherapy. All being well, his last chemo session will be mid-April and a scan scheduled for the following month will show how successful the treatment has been. The hope is that the tumour has significantly shrunk, but even if this is the case Gruff’s  scans will continue every six months for the following two years.

Gruff and his family have been incredible campaigners for increased funding for brain tumours, including Gruff writing and performing a song in Welsh about his experiences to raise money for CLIC Sargent. You can watch his video here: https://www.youtube.com/watch?v=nQlQiq2wTnY.

All his hard work culminated in his visit to Speaker’s House in Parliament and the announcement that the successful petition for more funding for brain tumours was to be debated in parliament on the 18th April 2016. At the age of seven, Gruff was the youngest patient to attend our Speaker’s House event.

Statement from the family of Gruff’s family, 09/03/16:

‘We are incredibly proud of Gruff for his bravery, for his kindness in thinking of other children with cancer, for being such an excellent ambassador and for his part in raising public awareness about brain tumours, the need to increase funding and improve research. Please know childhood cancer doesn’t just impact on the child, their parents and siblings – it has a huge and profound effect on everyone close to that child. Gruff is able to be a voice for all the thousands of children and their extended families who have been affected by this disease. The UK could be a centre of excellence in the field of brain tumour research, we could be world leaders – and today is an important first step in making our dream a reality.’

What Gruff, his family and many others have achieved is phenomenal and we wish all of them the best for the future.

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