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If only brain tumour research could be funded in the same way as leukaemia and other cancers

Category Archives: Lobbying

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It is time rare childhood brain tumours got the funding that they desperately need

Posted on by Natalie Dawson

Rhiley’s story In May 2014, the mum and dad of two-year-old Rhiley Bennett first became aware that something was not quite right with their daughter. After three weeks of various doctors and hospital visits, parents Kim and Richie were given … Continue reading

Posted in Lobbying, Stories | 2 Comments

Paying Tribute to Nicki Waterman

Posted on by Crispin

Today we are paying tribute to Nicki Waterman, Celebrity Fitness Trainer and The Sun newspaper’s fitness expert, who passed away on Thursday night following her brave battle with a glioblastoma brain tumour, the most aggressive and deadly form of the … Continue reading

Posted in Celebrities, Lobbying, News, Tributes | Leave a comment

New Cancer Drugs Fund opens

Posted on by Natalie Dawson

After several months of uncertainty, the end of July saw the new-look Cancer Drugs Fund (CDF) finally open for applications. The new fund is now responsible for providing cancer patients in England with access to new cancer drugs, as soon … Continue reading

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Cancer Patient Data: NHS Publishes Report on Data Security

Posted on by Natalie Dawson

Last month we blogged about patients and families having their say on cancer registration data. The issue of an NHS central record of information about people affected by cancer has become very topical in recent months. In September 2015, the … Continue reading

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All-Party Parliamentary Group on Brain Tumours – July 2016

Posted on by Natalie Dawson

As Westminster welcomed Britain’s second woman Prime Minister on Wednesday, the All Party Parliamentary Group (APPG) on Brain Tumours and members of the brain tumour community met in the heart of Parliament. The APPG meeting reviewed the landmark success of the … Continue reading

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