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If only brain tumour research could be funded in the same way as leukaemia and other cancers

Results of Proton Beam study

science_newsThe results of a study on the use of proton beam therapy for the treatment of medulloblastoma has just been published (read in full here).  This is the most common type of cancer in children and the current standard treatment is radiotherapy in combination with chemotherapy. While this is effective in up to 80% of people who undergo the treatment, there can be significant side effects. These can effect hearing and memory in the shorter term and give rise to problems in the heart, lungs and intestine in the longer term. Therefore, we need to develop more effective treatments with fewer side effects. (more…)

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Georgie Beadman – In Our Hearts

Georgie Beadman cropGeorgie Beadman wife, mother, daughter, and sister, died seven years after being diagnosed with a low grade glioma. She was a talented potter who loved music and the arts. In February 2015, Georgie died at the age of 41 leaving a husband and two small children.

“It is desperately sad to think that brain tumours kill more children and adults under the age of 40 than any other cancer and I was shocked to learn this area receives just 1% of the national spend on cancer research. A number of the girls who Georgie met during her year as a debutante are now involved in fundraising to support vital research into brain tumours which is wonderful. We were unable to help Georgie but I am sure that we can help others.”

Georgie’s mother Anne Hobson tells her story…  (more…)

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The Cancer Campaigning Group responds to Cancer Drugs Fund consultation

westminster cancer campaigningBrain Tumour Research supports the work of the Cancer Campaigning Group in relation to the Cancer Drugs Fund (CDF) consultation.  The Cancer Campaigning Group, of which Brain Tumour Research is a member, has put together a response to the consultation following an All Members Meeting last year. The current arrangements for the CDF expire in April 2016 and the Government is currently holding a consultation over how the Fund can be shaped and funded in the future. Any effort to improve access to cancer treatment, especially those for rarer cancers such as brain tumours, should be supported and we will be engaging in the consultation both through the Cancer Campaigning Group and as a separate charity.
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Janet Disney – In Our Hearts

Janet DisneyWife, mother and grandmother Janet Disney passed away just weeks after being diagnosed with a primary malignant brain tumour. She had lived her whole life in Wellington, Somerset, and was married to Steve for 36 years. The couple were members of the United Reformed Church and Janet, a keen baker who loved her holidays, was 74 when she died in June 2015.

“We had to wait for the scan results. We told the consultant we were due to go away for a few days to our caravan and it was agreed we should still go. As it happened, we were on our way to Dorset when the call came. It was devastating and I was in tears as I was told that Janet had an inoperable brain tumour on the left hand side and that, eventually, her right side would diminish. In fact, her whole body was affected for the last six weeks or so of her life. She relied on me completely for the last month and, as any husband would, I did everything for her.”

Janet’s husband Steve tells her story… (more…)

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Anna Swabey – In Hope

Anna SwabeyDiagnosed with a brain tumour at the age of 23, Anna Swabey was initially given just months to live. Now under the care of neurosurgeon Kevin O’Neill, who leads the Brain Tumour Research Centre of Excellence at Imperial College, London, Anna has had surgery and treatment, become engaged and is looking forward to her wedding. She is sharing her experiences through her blog Inside My Head and fundraising for research into brain tumours.

I am fortunate in that I don’t feel my illness dictates my life and while I am most definitely the same person, I even feel as if I am a better person for it. I know this may sound odd but my diagnosis has made me view my life differently and the way I am choosing to live now leaves me feeling fulfilled. I love knowing that I can make a difference, and, potentially help others.”

Anna tells her story…
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