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If only brain tumour research could be funded in the same way as leukaemia and other cancers

New Cancer Survival Statistics

The Office for National Statistics cancer survival statistics released yesterday (Adults Diagnosed 2008 to 2012, followed up to 2013) show once again that Brain tumours continue to have one of the poorest survival rates of all cancers. Only 19.8% of patients survive five years after their initial diagnosis, the 19th highest out of the 24 common cancers published, with a marginal improvement of only 1% since the 2007 – 2011 statistics.


Brain tumour one year survival rates now stand at 45%, sharply falling to 19.8% after five years, and have not improved at the same rates as other cancers. As Cancer Research UK’s report earlier this year highlighted, brain tumour survival rates have increased by 7.5% since the 1970s while overall cancer survival rates doubled from around 25% to more than 50%.

Brain tumours kill more children and adults under 40 than any other cancer and have not achieved comparable survival rates over the last 40 years of other cancers. Despite this it received only £6.8 million a year from NCRI members for research into new treatments in 2013. The only way to improve upon the figures released today is to substantially increase in research funding. Without increased funds, researchers with new, ground-breaking ideas will be deterred from working in brain tumour research simply due to the lack of funding opportunities and we continue to see only 19.8% of those diagnosed with brain tumours will survive five years.


Cancer Resarch UK:

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Government support for Saatchi Bill

The Secretary of State for Health, Jeremy Hunt MP, has pledged his support for a new law permitting terminal patients treatment with untested medicines.  The Medical Innovation Bill, also known as the Saatchi Bill, is due to be debated in Parliament next week and could well see a significant improvement in patient care and advancement in treatments for rarer cancers, such as brain tumours.


The Saatchi Bill, the brainchild of Lord Maurice Saatchi, will provide legal protection for clinicians offering new or different options where existing treatments have failed. By removing the fear of being sued from doctors, it is thought that many patients could bypass lengthy or non-existent clinical trials and allow for a more flexible and effective series of treatments for previously fatal diseases. Lord Saatchi launched his campaign earlier this year and has won over many initial critics, including Mr Hunt and the Department of Health.

We believe that this new law is a positive step for all patients with brain tumours as it allows for greater patient choice, as well as for an increase in trials and research into this terrible disease. We are calling on Parliament to approve the Bill.

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Parliament discusses patients travelling for proton beam therapy

The number of patients traveling abroad to receive proton beam therapy in the last 5 years has been published by the Government. In response to a question by Tessa Munt, Member of Parliament for Wells, Jane Ellison MP, Parliamentary Under Secretary of State for Public Health, published the figures below that show the number of patients funded for the treatment increasing from 20 to 124 in the last five years.

Children Adults Total Location
2009-10 8 12 20 France, USA and Switzerland
2010-11 30 20 50 USA (38 patients) and Switzerland (12)
2011-12 66 13 79 USA (majority of patients) and Switzerland
2012-13 83 16 99 USA (majority of patients) and Switzerland
2013-141 103 21 124 All USA
1 Figure includes treatments given and treatments due to be given following approval.

Proton treatment works by targeting radiation in a range of beams from different directions at a tumour, leaving healthy tissue surrounding the tumour unharmed. There are several countries that offer this therapy but the majority of the patients from the UK have travelled to the USA. While it is currently unavailable on the NHS, from 2018 it will be available to patients across the country at University College London Hospital and The Christie in Manchester.

We would like to thank Tessa Munt MP for her question and raising the issue of access to proton therapy treatments up the political agenda. As the recent Ashya King story has reminded us, all families want the best treatment for their loved ones and are willing to travel vast distances to secure it. We believe more funding should be guaranteed so that new treatments such as proton beam therapy are both created and available in the UK.

You can sign our epetition calling for government to act on brain tumours at

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New funding for the Cancer Drugs Fund


Yesterday the Health Secretary Jeremy Hunt announced an extremely welcome increase in the budget for the Cancer Drugs Fund. The Government has pledged an extra £160 million to the programme, increasing the annual spend from £200 million to £280 million until March 2016. This is brilliant news for patients and campaigners for all cancers as this money will help to fund the treatment for patients who are in most need of radical treatments.

The Cancer Drugs Fund was created by the Coalition in 2010 to improve cancer services. It enables patients to have access to drugs not yet approved by the National Institute for Health and Care Excellence, or not regularly provided by the NHS. So far the fund has helped 55,000 patients in England to receive cutting-edge treatment by making new and innovative treatments cost effective. The scheme has been a success and we hope that it continues to provide cutting-edge treatment for those cancers where mortality rates have increased over the past 10 years.

Rarer cancers such as brain tumours require innovation. The Government should ensure the necessary funding for research and treatment. We urge the Government to ensure that the Cancer Drugs Fund is the beginning of series of initiatives (including a focus on cancer deaths in under 75s and increased research spending for brain tumours) aimed at reducing mortality rates of cancers.

Please join our cause and let the Government know that more needs to be done to fight brain tumours by signing our E-Petition.

The list of drugs currently available through the fund can be viewed here.

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New Figures From CRUK

Brain Tumour ResearchSome encouraging news has appeared in many newspapers and media outlets today with the new figures from Cancer Research UK showing that deaths from the most common cancers have dropped by a third over the past 20 years.  The cancers involved are breast, bowel, lung and prostate.  This is fantastic news and shows the focus on these cancers has had the desired result as research money and awareness initiatives have led to new drugs and other innovative forms of treatment.

It also demonstrates why we need to continue the fight to raise awareness of brain tumours and the need for research money for this deadly form cancer to match the amounts for the more high profile forms of the disease.  The results speak for themselves.

While breast, bowel, lung and prostate cancers account for almost half of all cancer deaths, brain tumours kill the most young people.  Brain tumours kill more children and adults under 40 than any other cancer.  While every cancer death is a tragedy – to lose a young son or a daughter (or any other relative) is an unique devastating experience as many Brain Tumour Research supporters will tell you.  That is why it is simply wrong that just 1% of all national spend on cancer research goes on brain tumours and is why we will never give up our fight!

So yes – lots done and a big well done from Brain Tumour Research on breast, bowel, lung and prostate cancer – but so much more to do on the young person’s cancer, brain tumours.

Please join the fight and sign our petition -

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