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If only brain tumour research could be funded in the same way as leukaemia and other cancers

Tanya Malpass – In Hope

tanya-malpassRetired A&E consultant, Tanya’s first indication that anything was wrong was when she found she was muddling her words.  With no other symptoms, it was a huge shock to find that the cause of her speech impediment was a glioblastoma multiforme grade 4.  Mother of three grown-up children: Rosie, 24, Danny, 23, and Freddie, 18, she remains upbeat and incredibly positive, absolutely determined to be a long-term survivor.

“Sitting with a neurologist with my scan up on the screen, I heard him say: ‘Well, it’s not a stroke’.  Being a retired doctor, I didn’t actually need to be told that – I immediately recognised the golf ball-sized ‘blob’ at the back of my left temporal lobe as a brain tumour.”

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Alan Needham – In Hope

alan-needhamAlan was born and bred in Doncaster and worked for the civil service for over 30 years.  He is very proud of his two sons, Darren and Andrew, and his three grand-daughters.  Never having been a drinker or a smoker, Alan has enjoyed making music most of his life.  He learnt to play the euphonium as a very young boy and has played in numerous brass bands within South Yorkshire and Lincolnshire since the age of eight, as well as becoming a musical director and conductor.  Alan met his partner, Sarah, and moved to Scunthorpe in 2013, a year before he was diagnosed with a GBM4 and given just months to live. (more…)

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It is time rare childhood brain tumours got the funding that they desperately need

rhileys-smileRhiley’s story

In May 2014, the mum and dad of two-year-old Rhiley Bennett first became aware that something was not quite right with their daughter. After three weeks of various doctors and hospital visits, parents Kim and Richie were given the devastating news that Rhiley had a tumour on her spine.

Following surgery, they were told that the tumour had now reached her brain. Rhiley was soon diagnosed with a very rare, aggressive tumour of the brain and spinal cord called atypical teratoid/rhabdoid tumour (AT/RT). What followed was 11 months of MRI scans, chemotherapy, nurses’ trips and blood transfusions, until on the 23rd April 2015, two weeks after her third birthday, Rhiley sadly passed away.  (more…)


Nick Cotton – In Our Hearts

nick-cottonNick was a loving and intelligent man with a great sense of humour, who loved life.  He had only been married six months when he was diagnosed with an aggressive anaplastic oligodendroglioma brain tumour.  Less than 10 months later, at the age of 30, Nick passed away, having exhausted all known treatments.

Here is Nick’s story…

“I have set up The Nick Cotton Foundation to raise money for brain tumour research to help others suffering from this devastating disease.  It is great to hear about all the wonderful advances in treatments for so many different illnesses, including other cancers, but Nick’s brain tumour journey highlighted the desperate need for more effective treatments and ultimately a cure to bring hope for the thousands of people diagnosed with a brain tumour every year.” – Rachael Cotton (more…)

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Ian White – In Our Hearts

ian-whiteIan was only 41 years old when he passed away, just three months after learning he had an aggressive glioblastoma multiforme (GBM4).  His passion for riding and specifically the sport of eventing, led his widow, Kathryn, to establish the Ian White Memorial Trophy.  This is presented each August during the Smith’s Lawn horse trials in Windsor Great Park to the best amateur event rider. (more…)

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