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If only brain tumour research could be funded in the same way as leukaemia and other cancers

Clive Gathercole – In Our Hearts

Clive GathercoleHusband and father of four boys, Clive Gathercole was eventually diagnosed with a glioblastoma brain tumour after suffering months of health problems. He died in August 2012.

“In my anger I thought about complaining about the terrible care we received and the problems with securing a proper diagnosis, but I am not sure looking back at the past negatively is helpful, so instead as a family we are forging ahead with our fundraising plans to fund more research into brain tumours. I would hate to think of other families facing what we have been through, and think the lack of awareness of this disease is a tragedy in its own right.”

His wife Wendy tells his story … (more…)

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New figures on diagnosis show improvement

Brain Tumour ResearchThe National Cancer Intelligence Network has released new figures on how cancer patients are being diagnosed, with some good news for brain tumours and cancer more generally. The percentage of brain tumours diagnosed through emergency admissions, when the cancer is very likely to be at a late and incurable stage, fell from 59% in 2012 to 53% in 2013. This is a significant improvement and one that needs to be built on.


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Caroline Cronin née Johnson – In Our Hearts

Caroline CroninMarine biologist Caroline Cronin’s biggest wish after being diagnosed with a terminal brain tumour was to get back to work. There were two things she felt she still wanted to achieve – to get married and have a baby. She defied expectations to achieve both and the family were able to spend precious months at home together before Caroline passed away in October 2013 at the age of 32, leaving her husband Marcus and their six-month-old daughter Florence.

“The few times that Caroline allowed anyone to see her upset about her condition was when she worried about how her illness affected others. We both desperately wanted to be married and felt blessed to have a baby together. The grieving process takes a long time but knowing Caroline was able to do the two things she most wanted makes it a bit easier. We had been through so many very difficult times together and, when Caroline died, I was just grateful that it was as she had wished. I held her hand as she passed away at home. The first thing I did was to hold Florence and, in a way, it meant I didn’t feel as if I had lost Caroline completely as I had our baby.”

Caroline’s husband Marcus tells her story…  (more…)

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Steve Lloyd – In Our Hearts

Steve and Angela renew their vowsHusband, father-of-two and West Ham fan Steve Lloyd passed away in September 2015 seven years after being diagnosed with an aggressive and inoperable glioblastoma multiforme (GBM) brain tumour. He had just turned 40. Steve underwent treatment and retired from work in January 2015 in order to spend as much time as possible with his wife Angela and daughters Bethany, 12, and Chloe, 10. They were at his side when he passed away.

Steve’s wife Angela tells his story … (more…)

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APPG on Off-Patent Drugs

Bsue with reportsrain Tumour Research chief executive Sue Farrington Smith sat on a panel giving evidence at the All Party Parliamentary Group (APPG) on Off-Patent Drugs. The Inquiry sheds light on a Private Members’ Bill which is currently going through Parliament, the Off-Patent Drugs Bill (2015-16).

The panel, made up of preeminent clinicians and researchers as well as leading charities, focused on removing barriers to patient access for off-patent drugs.  (more…)

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