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If only brain tumour research could be funded in the same way as leukaemia and other cancers

Committee for Advanced Therapies: Looking to the Future

headache-1540220_1920Dr Kieran Breen, our Director of Research, talks about licensing drugs for the treatment of brain tumours. 

The European Medicines Agency is responsible for the licensing of most new drugs within the EU. One specific group of medicines regulated by the EMA is Advanced Therapeutic Medicinal Products (ATMPs) which are assessed by the Committee for Advanced Therapies (CAT), of which I am a member. The minutes of the monthly meetings are published online and provide information on the work of the committee. (more…)

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Sophie Peters – In Hope

sophie-peters-is-now-fundraising-for-brain-tumour-researchSophie was eventually diagnosed with a low-grade meningioma brain tumour after suffering crippling headaches for nearly a year. Feeling frustrated and desperate after months of repeated visits to her GP, it was a chance visit to an optician which led to her diagnosis. Eighteen months after her surgery Sophie is back at work but still struggles with nightmares about the tumour coming back.

Sophie tells her story … (more…)

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John McMahon – In our Hearts

john-mcmahonJohn was looking forward to a long and happy retirement with his wife Judith. Previously fit and well, he began experiencing seizure and was later diagnosed with a low grade glioblastoma brain tumour. Within months the tumour had changed to an aggressive grade IV and he underwent radiotherapy and chemotherapy. He defied expectations to live for three-and-a-half years, losing his battle in June 2014. (more…)

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Charlie Cox – In Hope

charlie-coxCharlie was just three and a half months old, in 2011, when he first started to have any symptoms.  At eight months, he was diagnosed with a brain tumour (which turned out to be a grade 2 oligoastrocytoma – rare among young children) and at 11 months he underwent surgery.  Just over three years later, in January 2015, Charlie welcomed his little brother Freddie into the world and in September the same year, he started in Reception at Abbey Primary School in Morden, Surrey.  He had 43 cycles of chemotherapy during an 82 week period which finally came to an end in January 2016. (more…)

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Fraser Cullen – In Our Hearts

fraser-cullenLittle Fraser Cullen was just three-and-a-half months old when he was diagnosed with an aggressive brain tumour. He underwent surgery and his parents Vicky and Warren had to make the agonising decision whether to put him through gruelling high-dose chemotherapy which might extend his life by just months or opt for palliative care. Fraser himself helped them to make their decision by smiling at his mum as she sat in Fraser’s room with the consultant giving them the news. Treatment proceeded giving the family precious time but Fraser passed away a year later. (more…)