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If only brain tumour research could be funded in the same way as leukaemia and other cancers

Tom Attwater – In Our Hearts

Tom stood by his girlfriend Joely when her daughter Kelli was diagnosed with cancer. He set about raising money for life-saving treatment abroad should Kelli need it but within months Tom was diagnosed with a brain tumour. He passed away in September 2015 at his home in the village where he grew up, less than two years after his marriage to Joely and four months after their longed-for son Fletcher was born.

“The most poignant moment on our wedding day was when Tom walked Kelli down the aisle. It was his idea: he wasn’t going to be around to give her away at her own wedding but this was something he could do now. My only regret is that, as the bride, I wasn’t there to see it! We do have some wonderful photos and videos though. We changed Kelli’s surname on that day as we wanted to be together as a proper family although we had no idea just how short-lived that would be.” (more…)

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Paying Tribute to Nicki Waterman

Nicki Waterman passed away from brain tumour Aug 2016

Nicki Waterman at Speakers House in March celebrating the success of e-petition

Today we are paying tribute to Nicki Waterman, Celebrity Fitness Trainer and The Sun newspaper’s fitness expert, who passed away on Thursday night following her brave battle with a glioblastoma brain tumour, the most aggressive and deadly form of the disease.

The 52-year-old, who lost her husband and her brother to cancer, was diagnosed with an inoperable brain tumour in May last year.

Her clinicians feared she wouldn’t have long to live after her diagnosis, but in March this year she revealed her tumour had shrunk after receiving specialised immunotherapy treatment and we all hoped she had turned the corner and would be one of the survivors. (more…)

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New Cancer Drugs Fund opens

After several months of uncertainty, the end of July saw the new-look Cancer Drugs Fund (CDF) finally open for applications. The new fund is now responsible for providing cancer patients in England with access to new cancer drugs, as soon as they are licensed. (For patients living in Wales, Scotland and Northern Ireland, the devolved governments decide independently how they spend their money on health. None of them have their own cancer drugs fund as such, but they are looking at ways to improve access to cancer drugs).
(more…)

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Cancer Patient Data: NHS Publishes Report on Data Security

Last month we blogged about patients and families having their say on cancer registration data. The issue of an NHS central record of information about people affected by cancer has become very topical in recent months.

In September 2015, the Secretary of State for Health, Jeremy Hunt MP, asked Dame Fiona Caldicott to carry out an intensive review into data security within the health and social care systems. As the National Data Guardian, Dame Fiona acts as the chief advisor in ensuring patient’s confidential data is kept secure and is used properly. (more…)

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Paul Van-Zandvliet – In Hope

Paul van ZandvlietA well-known former member of the rugby world and a key player in the Newcastle Falcons Premiership-winning team of 1998, Paul, 49, is taking on the fight of his life. Having been diagnosed with three types of cancer, the North Shields father of five is now focusing on spending quality time with his family, fundraising and raising awareness.

Here is Paul’s story…

“You can’t imagine how my family and I felt on discovering that I had three types of cancer, having gone to the hospital just to have my back pain assessed.” (more…)

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